Albinism : Not a curse

Albinism is not a curse but a disorder.

In many parts of the world, albinos are illtreated because of misconceived notions in society. Hence, they face constant rejection and are victims of superstitious myths. Many are brutally killed for their body parts as it is believed that it brings wealth and success. Therefore, their body parts are used in witchcraft practices.

This threat sends them in the constant state of trauma, insecurity and distrust. Even with protection laws set in place for albinos, it’s still difficult for them to live because of ignorance and superstitions in society.

To make people aware about what exactly albinism is and with Albinism Awareness Day approaching – 13Th of June, here are the top searched questions on google answered.

What does Albinism mean?

It is an inherited, non-contagious disorder where the person produces inadequate or no melanin. This causes a lack of pigmentation in the skin, hair and eyes.

According to the National Organization for Albinism and Hypopigmentation, “Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes. It occurs in all racial and ethnic groups throughout the world.”

In the US and Europe, albinism affects one in 18,000 to 20,000 people while in Sub Sahara Africa, 1 in 1400 people get affected. In India, around 100,000 to 200,000 people have this rare condition.

What causes it?

In Albinos, the genetic mutations interfere with their pigment production. These pigments are called melanin which are responsible for skin and hair colour.

What are the Symptoms and Disorders of Albinism?

It causes white skin, vision impairment and lighter hair. As a result, people with albinism are visually impaired and predisposed to skin cancer.

Skin

The most identifiable form of albinism is lighter coloured skin. With exposure to the sun, some people may develop – freckles, moles, large freckle-like spots, sunburn and the inability to tan.

Albinos are likely to have skin cancer because of the lack of melanin in their skin. Moreover, they don’t produce protective melanin, hence they need to take extra care of their skin in the sun.

Eyes

Albinos have paler eyebrows and eyelashes. Eye colour can be blue or brown and may change with age.

They have trouble with farsightedness or nearsightedness and are sensitive to light. A few have the inability of both eyes to stay directed at the same point or to move in unison.

Also read : More on Symptoms of Albinism

Can it be Cured?

There is no remedy for albinism.

However, to protect skin and eyes from the suns ultraviolet rays, wearing sunglasses and applying sunscreen is advised. Wearing prescription eyeglasses to correct vision problems is also recommended.

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